A variety of national, state, and local resources exist to support children and youth who are DeafBlind, including family support, online training, and more.
Please share any resources we may be missing!
National Resources
The National Center on Deafblindness
- A collection of useful information for families and professionals
- https://www.nationaldb.org/
Helen Keller National Center for DeafBlind Youths and Adults
- Providing support and services to adults and teens who are DeafBlind nationwide.
- https://www.helenkeller.org/hknc/
CVI Now
- Information, training, and support for families and professionals working with children who have Cerebral/Cortical Visual Impairment (a brain-based type of vision loss)
- https://www.perkins.org/cvi-now/
Information about Interveners from NCDB
- Resources on interveners to share with families and IEP teams
- https://www.nationaldb.org/for-state-deaf-blind-projects/support-from-ncdb/state-project-intervener-resources/
FACES: The National Craniofacial Association
- Assistance for children and adults with severe craniofacial anomalies in the United States
- https://www.faces-cranio.org/
The Pediatric Cortical Visual Impairment Society
- Transforming outcomes for children and youth with CVI
- https://pcvis.vision/
The National Center on Deafblindness: Professional Development for Educators
- Free professional development modules on teaching students who are DeafBlind!
- https://www.nationaldb.org/national-initiatives/iqp/professional-development-modules/
Active Learning Space
- The website for Active Learning Spaces, an educational approach developed for students who are Blind or DeafBlind, includes examples of tools you can build for your students with simple items
- https://activelearningspace.org/
Open Hands, Open Access
- Online self-paced training modules for interveners and other professionals working with students who are DeafBlind
- https://www.nationaldb.org/products/modules/ohoa/
Texas DeafBlind Project
- Our neighbors in Texas have an amazing collection of resources on their website.
- https://txdeafblindproject.org/
Louisiana Organizations
Affiliated Blind of Louisiana
Deaf Focus/ Louisiana Association of the Deaf
Louisiana School for the Deaf
Louisiana Center for the Blind
Families Helping Families
Louisiana Hands and Voices
Lighthouse Louisiana
Disability Rights Louisiana
Louisiana Accessible Educational Materials
Louisiana Commission for the Deaf
Louisiana School for the Visually Impaired
Syndrome-Specific Resources
Usher Syndrome
Usher Syndrome Coalition
Ush One see
Dr. Lentz’s laboratory for Usher Syndrome Research
Ava’s Voice
- For families of youth with Usher Syndrome
- https://avasvoice.org/
Down Syndrome
The National Association for Down Syndrome (NADS)
National Down Syndrome Society (NDSS)
CHARGE Syndrome
The CHARGE Syndrome Foundation
Peroxisomal Disorders
The Global Foundation for Peroxisomal Disorders