5th Annual Usher Syndrome in Louisiana
Symposium: Friday, September 19, 2025
Ush One See Run/Walk: Saturday, September 20, 2025
Join us in Lafayette for a weekend all about Usher syndrome in Louisiana and beyond! You will learn about research into treatments for those with Usher syndrome and speak with researchers and clinicians about managing vision loss. Then join Team Usher to run, walk, or cheer on our community.
Register now!
More details for both the symposium and the Run/Walk to come! For more information, please email USHinLA@lsuhsc.edu.
Click here to register for the Symposium + Ush One See Run/Walk
About the Ush One See 5K & 1 Mile Fun Run Registration
Payment is required to participate in the Ush One See 1 Mile Fun Run or 5K Run/Walk. Prices are listed below. To pay now, click here to register at the Ush One See sign-up page.
Ush One See 5K & 1 Mile Fun Run Prices
1 Mile Fun Run: $20 per person (Price increases to $35 after August 27, 2025 at 11:59pm CDT)
5K Run/Walk: $25 per person (Price increases to $40 after August 27, 2025 at 11:59pm CDT)
About the Usher in Louisiana Symposium
The overall goal of my research is to develop a therapeutic approach to prevent or cure the deafness and blindness associated with Usher syndrome (Usher). At LSU Health New Orleans, we focus on Usher syndrome type 1C, which affects the Acadian populations of south Louisiana and Canada.
About Ush One See
About Usher Syndrome
According to the National Institutes of Health, Usher syndrome is the most common condition that affects both hearing and vision; sometimes it also affects balance. The major symptoms of Usher syndrome are deafness or hearing loss and an eye disease called retinitis pigmentosa (RP).
There are three clinical types based upon the severity and age of onset of symptoms. Type 1 Usher is the most severe form with profound deafness and balance problems at birth as well as blindness beginning in early adolescence. A single mutation in the USH1C gene accounts for nearly all type 1 Usher cases in Acadian populations.
