HDC Spotlight: Family-Centered Values at the ASDID Clinic

The Human Development Center is committed to increasing access to quality services for underserved families. One such way is through the Autism Spectrum Disorders Interdisciplinary Diagnostic (ASDID) clinic, which provides outstanding services to families of children suspected of having Autism Spectrum Disorder (ASD). As an interdisciplinary clinic, the ASDID team consists of the family and professionals from different disciplines who work together to engage in best practices for ruling in/ruling out an ASD diagnosis. The ASDID clinic also provides recommendations for services and support for families who have children with a confirmed diagnosis of ASD.

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The Quiet Cajuns

From Natasha Aymami of the Helen Keller National Center:

There is a film about the Usher Syndrome Type 1C that is genetically tied to the Acadian population. This film will feature Dan Arabie, a leader in the DeafBlind community in Louisiana and a very proud Cajun. It includes the Babineaux family that has a son with Usher Syndrome that hosts the annual Ush One See 5K, which is a non-profit organization to create awareness and raise funds for a potential cure to stop the vision loss aspect of Usher Syndrome Type 1C. It will also feature Dr. Jennifer Lentz’s research on USH1C. The film will be shown at the Acadiana Center of Arts in Lafayette Louisiana on March 12th at 5pm. It is a FREE event.

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Making Mardi Gras More Accessible at Krewe of King Arthur

Dr. Rose Angelocci and her family on float at Krewe of King Arthur Mardi Gras Parade
Dr. Rose Angelocci and her family riding on float in Krewe of King Arthur

Being a member of the Krewe of King Arthur enables you to ride in one of the largest and most diverse Mardi Gras parades in New Orleans. Since its beginning, the Krewe of King Arthur has been known for welcoming people of all backgrounds and ethnicities, including people with disabilities.

For people with disabilities, riding in a parade may not seem like an obvious way to participate in Mardi Gras as the crowds may be intimidating. However, Dr. Rose Angelocci, a Community Work Incentives Coordinator (CWIC) at HDC, may change your mind. Dr. Angelocci, who is blind, has been riding in the Krewe of King Arthur since 2015 with her entire family. She was introduced to the Krewe by her friend Mary Leblanc, a long-time member and former Queen, who is visually impaired. Dr. Angelocci wants to spread the word to people with disabilities that riding in a parade can be considered a wonderful way to enjoy Mardi Gras. She points out that there are many other Mardi Gras Krewes that have riders with disabilities and the Krewe of King Arthur is just one example.

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Perspectives: Risk

Perspectives: Risk. Dignity of Risk by Dr. Philip Wilson

Perspectives is a blog inspiring change through different perspectives brought to you by our Constituent Advisory Committee (CAC), HDC staff, and local community. Our current theme is risk. If you have a perspective on risk as it relates to disability, email your idea to jrob44@lsuhsc.edu.

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First Conference on DeafBlindness in Africa: Registration

The very 1st DbI Africa Conference is happening!

REGISTER NOW and be online or on site part of more than 40 presentations and workshops, brand new research and all the vibrant energy of the green city under the sun.

KARIBU!

About Deafblind International

We are an international not-for-profit membership organization focused on the needs of individuals who are deafblind, their families and the professionals who provide services. We have a constitution and are managed by a volunteer Board from around the globe.

We are focused on bringing together individuals and organizations to share information such that they can develop and provide quality services in the regions of the world from which they come.

Search for the Next Superintendent of Schools for NOLA Public Schools

Magnifying glass with focus on paper

Provide your feedback in the search for the next Superintendent of Schools for NOLA Public Schools. The Orleans Parish School Board is hosting virtual input sessions for the community to provide feedback on the qualities they would like to see in the next NOLA-PS Superintendent. The Board is seeking an individual who will continue to build on the success of the current system while also leading the District forward through identifiable opportunities.

The remaining sessions are listed below:

If you are unable to attend the virtual session, you may provide your feedback here: https://nolasuperintendentsearch.com/

About the Orleans Parish School Board

NOLA Public Schools are governed by the Orleans Parish School Board. The Orleans Parish School Board is a government body comprised of seven elected officials, each of whom represent a portion of Orleans Parish. The board meets monthly as a full board at its business meetings, and in smaller committees that make recommendations to the full board. Committees include Accountability, Policy, Budget/Finance, Property, and Legal/Legislative. These meetings are free and open to the public. More information about board meetings, board policies, and related documents can be found here.

CDC Revises Child Developmental Milestones

Learn the Signs. Act Early. Words above picture with brown-haired ca. 3-year-old child with wide eyes and mouth open with thumb in mouth

The CDC “Learn the Signs. Act Early.” program has updated the developmental milestones for early child development including the Milestone Tracker App and online digital checklist. These new milestones for birth to age five provide families and caregivers support in their child’s development, assist in the early identification of developmental disabilities, and provide guidance about what to do if there are areas of concern.  Click below to learn about the new milestones and download the new materials.

About “Learn the Signs. Act Early.” 

“Learn the Signs. Act Early.” encourages parents and caregivers of young children to track their child’s developmental milestones and to act early if they have concerns about their child’s development.

HDC Spotlight: Courtney Bissonnette, RN, MSN

Ms. Courtney Bissonnette, RN, MSN recently began working at the Human Development Center (HDC) as a Health Specialist for HDC’s Early Head Start Child Care Partnership (EHS-CCP) project and a member of the core faculty of the Louisiana Leadership Education in Neurodevelopmental Disabilities (LEND) program. Before joining HDC as a Registered Nurse (RN) and Health Specialist, Courtney worked as an acute care pediatric nurse on pediatric medical surgical units for five-years. She also spent a year at a pediatric primary care clinic as a pediatric triage nurse. Courtney left the hospital setting and earned a Master of Science in Nursing Education, while simultaneously working full-time as a nurse at a childcare center that served young children with special needs. Courtney has a personal relationship with developmental disabilities. She is the mother of a child with cerebral palsy and epilepsy. Courtney’s professional training and life experiences make her uniquely able to notice small details that can impact a family or child’s health, wellness, and quality of life. Courtney uses this lens in her daily work to make sure that faculty, staff, teachers, families and children possess the wellness tools they need to reach their full potential.

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Competitive Integrated Employment: Positive Outcomes for Individuals with Intellectual and Developmental Disabilities

White man who appears to have Down syndrome working at computer

Positive outcomes for individuals with intellectual and developmental disabilities (I/DD) who obtain Competitive Integrated Employment (CIE) were reported in a new research study (https://idd.vcurrtc.org/resources/content.cfm/1424 ) in the areas of economics, psychological health, and physical health. The research findings are summarized in the postcard below. Benefits were also identified in many other “quality of life” areas including self-determination, personal independence, autonomy and maladaptive behaviors.

* This summary and postcard are for general information and reference purposes. The original article is owned and copyright protected by John Wiley & Sons, Inc.

Citation: Taylor, J., Avellone, L., Brooke, V., Wehman, P., Inge, K., Schall, C., & Iwanaga, K. (2022). The impact of competitive integrated employment on economic, psychological, and physical health outcomes for individuals with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 1-12.

Learn more about this article and others by visiting the VCU-RRTC on Employment of Persons with Intellectual and Developmental Disabilities https://idd.vcurrtc.org/  

The VCU RRTC-IDD Journal Article Database catalogs journal articles on employment of people with disabilities. Each article has been reviewed and summarized by staff. The summaries are provided in order for you to determine if you would like to review the original research.

Competitive Integrated Employment Outcomes postcard (text at link)