The Louisiana Policy Institute for Children (LPIC) released a new report, Struggling to Recover: The Impacts of COVID-19 on Louisiana Families with Young Children, which shares the findings of a statewide survey of parents with young children from September 21 – October 6, 2020.
This survey provides insights into the needs and challenges of families with young children in Louisiana, many of whom are struggling as the COVID-19 pandemic endures. Families continue to rely on child care to go to work or school while they face reduced incomes, increased stress, and concerns about the spread of COVID-19. Furthermore, the economic challenges resulting from the COVID-19 pandemic hit families of color and lower income families especially hard.
This survey was conducted in partnership with Agenda for Children, Louisiana Department of Education, New Orleans Campaign for Grade-Level Reading, Urban League of Louisiana, and Women United of Southeast Louisiana.
The Louisiana Policy Institute for Children hosted a virtual press conference to share key takeaways from the report and conduct a virtual Q&A. To view a recording of the press conference, click here.
From Rylin Rodgers, Director of Public Policy, AUCD; Madison Tallant, Community Catalyst; and Liz Weintraub, Senior Advocacy Specialist, AUCD:
We want to hear from you about your health care experiences!
We know that visits to the doctor are not always great, and we want to make them better. Learning from you will help us educate doctors, nurses, and therapists about what they can do to make your experience better. Please click this link to open the survey: https://www.surveymonkey.com/r/HealthCareVideoSurvey. Please complete the survey by Friday, February 5.
For more information, check the full e-mail message that was sent out to AUCD distribution lists:
Just before the LSUHSC’s final close of business for the Christmas and New Year holidays, HDC’s partner, the Louisiana Developmental Disabilities Council posted news about upcoming trainings and the response to the COVID-19 pandemic that some of our readers might want to know.
Louisiana Parent Training and Information Center is a statewide project of Families Helping Families of Greater New Orleans. They are seeking diverse members from all over Louisiana for their Youth and Young Adults Advisory Group, and also their Parent and Family Advisory Group. The Louisiana Youth and Young Adults should be 16 to 26 years of age with Disabilities or Special Health Care Needs, see https://tinyurl.com/y4latdm5. They are also seeking a diverse group of Louisiana Parents or Family Members that have a Child with Disabilities or Special Health Care Needs, see https://tinyurl.com/yxmp7g9p. For more information see the attachments.
The Louisiana Developmental Disabilities Council is seeking a passionate and creative Executive Director that demonstrates a strong understanding of the history of disability and the work that still lies ahead for the people of Louisiana. The desired qualifications of a candidate for this high-level leadership opportunity are described below.
The incumbent in this position is responsible for administering the statewide operations of the Louisiana Developmental Disabilities Council. Assumes signature authority over all contracts, budget, staff, federal reporting, and any other charge issued by federal and state authorities. As such, the Executive Director is responsible for the strategic leadership and implementation of all functional activities of the Developmental Disabilities Council to accomplish advocacy, capacity building and systemic change in Louisiana. The incumbent will be held accountable for implementing these functions in accordance with the Council plan and state laws.
Louisiana Relay is the state’s official service providing access to telephone calls for individuals who are deaf, deaf/blind, hard of hearing, or who have difficulty speaking. On Monday, November 16, from 3:00 PM – 5:00 PM, Louisiana Relay will be holding its annual Community Resource Fair! This year, the fair is focusing on providing practical information for students studying communication disorders in order to become audiologists or speech language pathologists. You may be interested in this event if you:
- Are interested in working with individuals with hearing loss
- Are interested in working with individuals who have difficulty speaking
- Want to learn more about Deaf culture from the Director of Deaf Services at Lighthouse Louisiana
- Are curious about life with Aphasia from the Director of the Aphasia Center of Acadiana
- Have or know someone who has difficulty hearing or speaking over the phone
- Would like to be entered in a drawing for a $50 Amazon gift card
Register for the Louisiana Relay Community Resource Fair
Please register today and send this opportunity along to any students, NSSLHA members, and faculty who you believe could benefit from the information we are offering.
Feel free to contact T. Bobbye Abney, Louisiana Outreach Coordinator at Hamilton Relay (Tami-Rae.Abney@hamiltonrelay.com), with any questions!
We want to hear from you! The Maternal Child Health Bureau (MCHB) is seeking public input on A Blueprint for Change: Guiding Principles for Advancing the System of Services for Children and Youth with Special Health Care Needs (CYSHCN) and Families (Blueprint) by November 30, 2020.
In the fall of 2019, MCHB began working with a small group of CYSHCN experts and families to reexamine systems of care for CYSHCN and to identify priorities and opportunities that can advance those systems and improve outcomes. The result is a draft Blueprint that can inform programs and policy at the community, state, and federal levels.
MCHB invites you to review the draft Blueprint and provide input on how this work can be operationalized at the community, state, and federal levels in four key areas:
- Health Equity
- Access to Services and Supports
- Family/Child Well-being and Quality of Life
- Financing of Services
Please submit comments via email to CYSHCN@hrsa.gov and reference “CYSHCN Blueprint RFI” in the subject line. Deadline to respond is Monday, November 30, 2020 by 11:59 p.m. Eastern Time.
Please note that: Responses to this Request for Information (RFI) may be made publicly available; do not include any proprietary or confidential information. HRSA/MCHB will not respond to any individual comments, except to clarify written responses. HRSA also will not respond to questions about potential policy issues related to this RFI.
More Information on Children with Special Health Care Needs
Please share widely.
The Administration for Community Living has been working with a group of federal and non-federal partners – including several experts from the UCEDD network – to develop a COVID-19 decision guide for families with children with special health care needs. We are seeking your assistance with beta testing this tool.
While many children have already started school — parents of children and youth with special healthcare needs (CYSHCN) will continue to make difficult personal decisions about how to keep their children safe and learning. With guidance from public-health experts, parents, and health providers – the Stanford Health Literacy Lab has designed this interactive, educational Guide for Parents of CYSHCN, to help parents make sense of these back-to-school decisions. Please access the Decision Guide at SCOLGuide. Now in “beta test” mode, the Guide is meant to be used on a smartphone, and to guide discussion with a trusted advisor (child health provider).
We are asking that you share this with your networks so that the developers at the Stanford Health Literacy Lab can improve upon this tool to make it most useful to families. We appreciate your assistance with getting the word out about this important resource for families. Please send any feedback within the Guide, or to mcjsmith@stanford.edu.
To ease the economic burden for those struggling with lost wages due to the coronavirus (COVID-19) pandemic, President Donald J. Trump authorized FEMA to expend up to $44 billion from the Disaster Relief Fund for lost wage payments. FEMA will provide grants to participating states, territories, and the District of Columbia to administer delivery of lost wages assistance. Please see the attached document for further details.
Louisiana has been approved for a major disaster declaration for Emergency Protective Measures (Category B). (More information can be found on FEMA’s website at: www.fema.gov.)
FEMA’s Region 6 (which includes Louisiana) Disability Integration team members will provide support to its disability partners throughout Louisiana to ensure that the needs of people with disabilities, including access and functional needs, are incorporated throughout disaster operations.
To register for assistance, call the FEMA Helpline: 1-800-621-FEMA or 1-800-621-3362, or go to: https://www.disasterassistance.gov/
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